Waterfall Angels on Facebook

Our rainbow Samuel Thomas Goldthorpe

Lilypie First Birthday tickers

Saturday, June 26, 2010

A Journey to see a Specialist

I finally got to see the specialist in North Carolina, but before I write about what was said in that appointment we had lots of fun that I want to write about first. We started our journey on Thursday afternoon. We first started driving to Ohio to go to a youtube Atheist gathering. We started our journey in the afternoon because I was sick for a few days before hand and wasn’t able to pack until I woke up in the morning. We drove for 10 hours before we decided to get a hotel for the night in Statesville, North Carolina. We got up about six in the morning and were back on the road around seven. The drive from Statesville to Columbus was absolutely beautiful. We drove through the Appalachian Mountains and there are no words to describe the beauty. I have so many wonderful pictures, but I will have to Photoshop them because there was no way Jonathan would stop every 5 minutes for me to get a picture so I had to take them from the car and driving in the summer equals bugs on windshield.

We had a blast in Ohio. We stayed there for two nights Friday and Saturday and left to Durham on Sunday morning. The two nights in Ohio was the best two nights I have had since losing Jasper. I can’t even explain it, but I will try. During those two nights I got drunk and I think the best thing about it is that nobody knew about Jasper. I did tell one women about him because she asked about my charms on my necklace. It wasn’t like I didn’t want to talk about him, I did. It’s just I took a step back and focused on having fun and not obsessing about everything that I have lost, but just decided to have fun. I didn’t even realize just how much time I spend obsessing about losing Jasper and trying to conceive Jasper’s sister or brother that I forget to have fun. I almost forgot about one of the greatest parts of being in Ohio. We went to the science museum and went to the Titanic Exhibition. I absolutely never thought I would ever see it and I did. It was amazing! Seeing those artifacts that were lying on the ocean floor for 60+ years, well there are no words. We got to touch a piece of the Titanic and there was a room that was filled with stars, had a large piece of ice (iceberg), and it was freezing and eerily quiet. The atmosphere of the room was supposed to simulate how it was the night the Titanic sank. I have read a lot of books about the titanic, but to see it was, priceless.

Driving to Durham, North Carolina we went through the same mountain range we did on the way out and still breathtaking. We got to Durham and our next hotel at about six in the evening. We found the best Italian Restaurant and had dinner. We had a free day on Monday so we decided to go to The Streets at South Point mall and it was huge. We spent all day there looking around and of course shopping and spent our night swimming in the pool at the hotel.

Now, the major point of this trip was to see the high risk specialist that specializes in blood clotting disorders. It was Dr. J, and internist, and a Geneticist that where all in the room and it was a bit intimidating. We started off going through my history with miscarriages and the events that happened during the time I was pregnant with Jasper. She talked about my risks because of my Homozygous Factor V and was very surprised I never developed a blood clot when I was taking birth control or smoking. She said that because I had such a high risk for clotting and the fact that Jasper had such a large clot in his placenta that it would be a good idea for me to start Lovenox 40 mg a day pre-conception and then once we hear a viable heartbeat then I would start Lovenox twice a day based on my weight. We also talked about my risk for getting Pre-eclampsia and HELLP again and sadly we do not have good news there. She said based on the gestational age I was when I got it (24 weeks), the fact that I have an underlying condition, and the fact that Jasper had severe IUGR. My risks are elevated to 75% chance that it will happen again, but the chances are lowered due to the fact that I will be on Lovenox early enough. She even said with women who get pre-e the problem started when the placenta was implanting in the uterus. She said that with the early treatment of the Lovenox could help, but it is still a roll of the dice and you never know what could happen. She also went through my other options such as surrogacy and adoption, but I told her we are not ready to go that route yet. She did say that she would tell me if it was in fact to dangerous to get pregnant and she has told people that they should not even try or if they got pregnant that they should abort the baby due to such high risk to the mother, but she did not say that about me and she said that. She said my risks where manageable with Lovenox. I did talk to her about my job and she couldn’t tell me to quit my job and get a new one, but she did stress that having a high stress job like mine lots of waking, pushing, pulling, lifting, and bending could be harmful in pregnancy and could impact the blood flow to the placenta. She couldn’t legally tell me that it would be a good idea to switch jobs, but I understand what she was saying. When I was pregnant with Jasper I was working in an out-patient rehab at the time and it required me to be on my feet all day long and I was always cramping up which I thought to be normal. I knew that I shouldn’t be doing all that, but I never in a million years thought I was harming Jasper. That is pretty much it. I am still waiting to hear from my Hematologist about when I should start the Lovenox, but if he doesn’t call me by the end of next week I will call him.


  1. i have a friend in your situation, who actually had a blood clot throughout the duration of her pregnancy and was on high doses of lovenox. she has a nine month old son! it can be done! i'm hoping for you, this works!

  2. I'm so glad you were able to have a good time! What a breath of fresh air that must have been.

    I hope you were able to walk away from the specialist feeling encouraged. She sounds like a very good doctor.

  3. So so glad you guys had a good trip.

    I am so glad too that you got some questions answered. I'm routing for you hon. Will be here for you when you are ready to take that next step.

    I am keeping you close to my heart and sending you TONS of positive vibes!!

  4. I'm so happy the doctor thought the lovenox will help and that you had a relaxing time on your trip.I'm hoping and praying that there is a sweet baby in your near future!xxxooo

  5. It is good to hear you upbeat about your trip. The distractions always help. I hope that you will soon be able to start on your Rainbow.

  6. i'm glad you had a good trip and that you go t some promising news from the specialist about lovenox. hopefully you can work something out with your job that will make things more manageable - i know that there you shouldn't be lifting things over a certain weight when you have a high risk pregnancy, for example. thinking good thoughts for you.

  7. I'm glad you had a good few days to enjoy yourself. My hubby and I saw the Titanic exhibit when it was in Cincinnati and it was really neat. We loved it and I'm so glad we got to see all the artifacts. I'm glad you did too!

    I'm glad you were able to see the specialist and have more of a game plan.